PUBLIC POLICY ACTION


Research Opportunity in Tourette Syndrome


The Tourette Association has a great opportunity to advocate to be potentially included in federal legislation known as, H.R.292/S.849 The Advancing Research for Neurological Diseases Act.

Prevalence data on Tourette Syndrome in children is inconclusive and contains conflicting results. In addition, there is little to no information on the impact of the disorder in adults. This bill could establish the prevalence of Tourette and help close the gap between identified and undetected cases, especially among ethnic and racial minority populations in the U.S. The bill could also provide for surveillance of Tourette in the U.S. that could provide insights into the long-suspected environment role in the development of the disorder.


Send Congress a letter of support for this bill and invite your Senators to attend an educational briefing to learning more on this issue. On September 16, 2015 the Tourette Association, Parkinson's Action Network and the MS Society along with 8 other Neurological Disease Associations will be holding a Briefing on H.R. 292/S. 849 The Advancing Research for Neurological Diseases Act.

 

Click Here to invite Congressional staff to attend this important briefing to learn about Tourette and S. 849.

 


Tourette Advocacy for Student and Education Services


Since 2006, Members of the Tourette Association have witnessed the powerful role policy has in supporting students with disabilities when Tourette Syndrome was included within the Individuals With Disabilities Education Act (IDEA). As Congress discusses ways in which to improve the education system and hold students and teachers accountable we invite you to voice your concerns and relay 3 specific recommendations on how to meet the needs of students with Tourette and Tic Disorders.

 

Click Here To Advocate for Education Services Now!

 


 

 


Click to visit the Tourette Association of America Site


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